Showing posts with label twitter. Show all posts
Showing posts with label twitter. Show all posts

Wednesday, March 27, 2013

Learning to Grieve on Social Media


Learning to Grieve on Social Media




Whether publicly or via intimate messages, people’s Facebook interactions with the dead mimic the grieving rituals we’ve held throughout time.

In Mexico, families honor their departed ancestors by leaving marigolds, baked goods and favorite possessions of the dead on altars. Similar to this Dia de los Muertos, Facebook users share cherished memories and stories, post favorite photos, inside jokes and “gifts” on their late loved ones’ Facebook timelines.

“People have built cemeteries and monuments in remembrance for as long as we’ve existed. Now those memories are digital,” says Margaret Carpo. Her friend died in a car accident in the Philippines in 2009, but her family continues to keep her Facebook Timeline active.


Western society especially presumes that individuals can overcome grief by emotionally detaching themselves from the deceased, says cyberanthropology expert Michaelanne Dye. “However, in the past 20 years, researchers have begun to explore the healthy benefits of maintaining a tie to the deceased… Considering this, Facebook appears to be a natural way for people to work through grief over the loss of a loved one.”

Dye also points to an evolving practice of identity construction, which makes dealing with grief in the Facebook era all that more nuanced. Today, identities are co-constructed through social media interactions. “Therefore, the deceased’s online identity not only continues in the virtual space; it can also evolve and adapt as others continue to interact with the dead person’s profile,” says Dye.

Some of those interactions, however, infuriated Dunham as she returned to interact with her dead partner’s Facebook profile. She diagnosed some of Cheryl’s Facebook friends with what she calls “social necrophilia,” the eager scramble to prove one maintained a close connection with the deceased.

“Everyone always wants to pretend they knew the dead person better than they do,” says Dunham. “For example, one person wrote, ‘You’re drinking champagne in heaven with my grandfather right now.’ This was ludicrous: Cheryl was a staunch atheist and she had 10 years sober, which was something she wrote about a lot.”

Andrew Ross lost his wife Debra to cancer two years and eight months ago. He feels that Debra’s Facebook friends seem detached from sincere grief.

“Most Facebook friends are pretty shallow,” he says. “There is not the depth of true emotions such as one would get in a real relationship. A lot of people respond in an overly emotional manner that seems to play on showing others how deeply they feel, whether it is true or not. It mostly strikes me as false and unpleasant. I got no comfort from the experience.”

Ross has mixed feelings about maintaining Debra’s Facebook profile and permanently deleting her presence there altogether. “At some point I feel her page should be deleted permanently. She is gone and it should be too,” he says.

Social media etiquette surrounding death is a delicate and highly subjective construct. What one person views as good judgment could translate as incredibly poor taste or downright offensive to others.

Julie Spira authored The Rules of Netiquette: How to Mind Your Digital Manners, wherein she talks about how to approach the “social media obituary.” In an email interview with Mashable, she praises people who honor the dead by celebrating that person’s memories and accomplishments on Facebook. However, she has also encountered instances she believes exemplify shockingly poor taste: “When a woman posted a photo of her newly deceased husband just prior to the ambulance arriving to take him to the morgue. It was grotesque and made many people uncomfortable.”
By this point, many people have learned that their friends and family have very different ideas of what constitutes “normal” grieving — especially when someone takes his or her grief public on social networks.

For many, grieving through social media is more comfortable than real-life interactions, which is why some people encounter what they translate as odd or callous behavior from fellow users. Dye adds, “Facebook provides a way for people to grieve publicly and receive feedback and support from others, while not forcing them to endure these painful interactions face-to-face, which, for some, might be an easier and healthier way for them to work through their grief.

“In the physical world, methods of mourning vary across cultures, as well as among individuals within the same culture. This also holds true in the online world.”

Grief therapist Lisa Leonard adds that grief varies wildly for each individual, and that it usually doesn’t progress orderly, like steps in a staircase. That being said, she can clearly identify the stages of grief (denial, anger, bargaining, depression and acceptance) in her friends’ Facebook behavior.

But Leonard believes that social media can actually ease the process for some. “Being able to access the lost one’s profile after death is beneficial,” she says. “It allows a connection to others who loved him or her, a source of memories and humor to share and an opportunity to say ‘goodbye’ or ‘I’m missing you’ in a way that can soften the blow and move the healing along.”

Sharing from Connecting Directors.com

Monday, January 14, 2013

Raising Awareness of #OrganDonations One Tweet@a Time



Raising Awareness of #Organ Donations One Tweet@a Time

by M-Gillies

In America alone, there are over 93,000 men, women and children currently waiting for life-saving transplants, a number that is increasing every 12 minutes as another name is added to the UNOS National Transplant Waiting List. For these people, they are on the waiting list as end-stage organ failure patients and their struggle to live depends on the complex and technologically-advanced organ allocation system that links patients with organs donated by strangers.

With such a high number of people requiring organ donations, it turns out that the number of donors is well below a beneficial number. In fact, as of 2012, UNOS National Transplant Waiting List has approximately 11,716 donors.

From the depths of obscurity, a 20 year-old Ottawa, Ontario woman has taken to her twitter to rally support for the cause now known as be a donor.

Helene Campbell began her cause back on November 20, 2011 when she developed a website called www.alungstory.ca which chronicles her journey toward receiving new lungs in order to breathe well once again, and enjoy life the way some people may take for granted.


With a diagnosis of idiopathic pulmonary fibrosis, Campbell’s lungs have been scarred due to inflammation, after receiving pulmonary function tests, it was determined that she only has 24% lung function. In order to treat her condition, Campbell and her mother have taken up temporary residence in Toronto while they await notice of a transplant donor. While Campbell’s medical bills are covered by the Ontario Health Insurance Plan, her costs of re-location are not covered.

Being that her family has now been divided, with her mom taking a temporary leave of absence from her career as a nurse, the family income has been halved. It was with this endeavour that the conception of a website chronicling Campbell’s journey came to fruition. To further help her cause, Campbell and her lifelong friend Kelly Logan began a Facebook event asking people to tweet about organ donation and to further consider becoming a donor for a cause that would save not just one life, but one that could save tens of thousand lives.

“My best friend is going through this and it’s not easy,” Logan said in an article for Global News. “If I could give her my lungs, I would, but I can’t do that.”

To spread the word about the importance of being an organ donor, the young women decided it was time to move in an alternative direction to spread awareness for the cause, and so began the task of getting Canadian singing heartthrob Justin Bieber on board.

Since his initial brush with fame, Bieber has generated upwards of 16.5 million digital disciples worldwide, and understanding the impact that his voice could have, Campbell and Logan decided to tweet Bieber with the hashtag #beanorgandonor.

“I would love for Justin Bieber to either retweet or say something about it himself,” Campbell said to Global News. “I would like to see him set an example for all of his followers.”

It was after their tweet on January 19, 2012, from @alungstory which read “Hey @justinbieber! I BELIEB you should use that Canadian voice of yours and help save lives like mine #beanorgandonor beadonor.ca #giveblood,” that the hashtag #beanorgandonor began trending across Canada’s twitter community.


Then something incredible happened.

 The Biebs’ replied with a heartfelt message on January 21, 2012 saying “@alungstory i got the word… you have amazing strength. I got u. #BeAnOrganDonor” followed by a second tweet which read from Bieber, “help spread the word for @alungstory alungstory.ca #BeAnOrganDonor,” “and @alungstory NEVER SAY NEVER”.

Meanwhile, as Campbell awaits for her transplant, she has said she will continue to blog and make videos to spread the message of the importance of being an organ donor.

Learn More About Helene Campbell at A Lung Story or follower her on Twitter @alungstory to help spread the awareness and importance of being an organ donor.
Taken from https://mysendoff.com

And be sure to check out the mysendoff.com Facebook app Giving Means Living https://apps.facebook.com/giving_means_living/